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Testimonials of AK warriors

Acanthamoeba Keratitis (AK), this rare disease, is affecting many lives worldwide, not only the person suffering from it but their families, friends and co-workers.

Below a collection of patient stories and testimonials going through the Acanthamoeba Keratitis rare disease journey. Whether they are in written or in video, you can experience and hopefully feel a bit of what it is like going through this horrible disease. How Acanthamoeba Keratitis impacts our life’s in so many ways.

Our aim is to gathered as many stories as possible from all over the world, to bring awareness and share that this sadly not an “unique” case, numbers are raising .. many are suffering from this.

➡ Please remember if you are going through Acanthamoeba Keratitis, that you are not alone, that there are support groups available to help you get through this journey.

You will find them in  English, Dutch, Danish, HungarianPortuguese, Spanish

Videos of AK Warriors

Below a collection of patient testimonials going through the Acanthamoeba Keratitis rare disease journey.

Life through our eyes: Living with Acanthamoeba Keratitis

Protect your eyes: Sam’s story— keep water away from contacts

Written stories of AK Warriors

Below a collection of patient testimonials going through the Acanthamoeba Keratitis rare disease journey.

English

Touching my contact lens with a wet hand left me blind in one eye’: Nanny, 24, reveals how a parasite found in tap water was to blame for her shocking sight loss – Lucy Benyon – The Daily Mail (2020)

In less than 24 hours Acanthamoeba Keratitis changed my life – Juliette Vila Sinclair-Spence- (2020)

20 Voices: Edinburgh woman raising awareness of dangers of poor contact lens habits after infection left her blind in one eye – Eye for Sight – (2020)

Protect your eyes: Sam’s story— keep water away from contacts – Bridge City News – Laurice Alexander – (2020)

Ruth Dale – acanthamoeba keratitis – YouTube – Optometry Today – (2019)

Ian West – acanthamoeba keratitis – YouTube – Optometry Today – (2019)

My so called Amoeba by Heather Green – (2019)

Canadian blinded by water-borne parasite outraged by medication cost – CTVnewsCA – (2019)

Man blinded by parasite after showering with contacts in – FOXNews – (2019)

Anna Krauze’s experience of Acanthamoeba keratitis – Fight for Sight – (2019)

Sydney mother-of-two told she would go blind after contracting eye parasite – 7NEWSAU – (2019)

Woman’s contact lens care leads to parasitic eye infection – Carla Bayron – Wilx10 – (2019)

Woman claims she lost eye after parasite got stuck behind contact lens during shower -Madeline Farber – Fox News (2019)

Blinded by Bug – Woman loses her eye after parasite burrows under her contact lens in shower on holiday – Nika Shakhnazarova – The Sun (2019)
Marie Mason – My ongoing AK Journey – (2018)

Acanthamoeba Keratitis Documentary | The Parasite That Blinds by Chelsea Cao with Juliette Vila Sinclair-Spence testimonial (2018)

Amanda Eckersley – Woman fights back after losing sight in one eye to rare disease – Nicholas Boyack – Stuff  (2018)

Man Diagnosed with Acanthamoeba Keratitis in Eye –  Animal Planet (2018)

Mom temporarily blinded by parasite after swimming with contacts – Patricia Murphy | SWNS (2018)

Richard Brogan – gets eye infection while on holiday abroad – Kent Online (2018)

Stacey Peoples – Woman Contracts Cornea-Eating Parasite After Swimming Wearing Contacts – CBS Denver (2018)

Acanthamoeba Keratitis Documentary | The Invisible Eye Infection  – Chelsea Cao – YouTube – (2018)

Whitney’s Story— Keep Water Away from Contacts – CDC – YouTube – (2017)

Ryan’s Story—Water and Contacts Don’t Mix – CDC – YouTube – (2017)

Te’s Story—Don’t Sleep in Contacts – CDC – YouTube – (2017)

Claire Wilkinson – Contact lens parasite left woman paralysed and blinded – Toby Meyjes (2017)

Protect Your Eyes: Whitney’s Story— Keep Water Away from Contacts – CDC – (2017)

Irenie Ekkeshis – I was blinded by my contact lenses – BBC News – Claire Bates – BBC News (2017)

Liz Crane – My AK story  – ODAK (Orphan Drug for Acanthamoeba) – Christina Ceratium – YouTube (2017)

Ian West – My experience of Acanthamoeba keratitis – ODAK (Orphan Drug for Acanthamoeba) – Christina Ceratium – YouTube (2017)
A parasite was eating my eyeball by BBC Newsbeat (2015)

Stephen Souter – Blinded by contacts: Man loses sight after parasite hidden in tap water BURIES into cornea – Becky Fletcher – Express (2015)

Acanthamoeba Keratitis Parasite in Her Eyeball Almost Blinds Florida Teenager – Ashik Siddique – Medical Daily (2013)

Michele Hoffman: Acanthamoeba Keratitis – YouTube (2009)

Dutch - Nederlands
Danish - Danks
French - Frans
Hungarian - Magyar
Italian - Italiano​
Portuguese - Português​
Spanish - Español