Acanthamoeba Keratitis (AK), this rare disease, is affecting many lives worldwide, not only the person suffering from it but their families, friends and co-workers.
Below a collection of patient stories and testimonials going through the Acanthamoeba Keratitis rare disease journey. Whether they are in written or in video, you can experience and hopefully feel a bit of what it is like going through this horrible disease. How Acanthamoeba Keratitis impacts our life’s in so many ways.
Our aim is to gathered as many stories as possible from all over the world, to bring awareness and share that this sadly not an “unique” case, numbers are raising .. many are suffering from this.
Please remember if you are going through Acanthamoeba Keratitis, that you are not alone, that there are support groups available to help you get through this journey.
You will find them in English, Dutch, Danish, Hungarian, Portuguese, Spanish
Life through our eyes: Living with Acanthamoeba Keratitis
Protect your eyes: Sam’s story— keep water away from contacts
Mulher fica cega de um olho ao usar lente de contato infectada com parasita… – Veja mais em – UOL – (2020)
Dora Alexandra Coelho – Alerta para todo os utilizadores de lentes de contacto – a minha história – (2019)