Testimonials of AK warriors
Acanthamoeba Keratitis (AK), this rare disease, is affecting many lives worldwide, not only the person suffering from it but their families, friends and co-workers.
Below a collection of patient stories and testimonials going through the Acanthamoeba Keratitis rare disease journey. Whether they are in written or in video, you can experience and hopefully feel a bit of what it is like going through this horrible disease. How Acanthamoeba Keratitis impacts our life’s in so many ways.
Our aim is to gathered as many stories as possible from all over the world, to bring awareness and share that this sadly not an “unique” case, numbers are raising .. many are suffering from this.
Please remember if you are going through Acanthamoeba Keratitis, that you are not alone, that there are support groups available to help you get through this journey.
You will find them in English, Dutch, Danish, Hungarian, Portuguese, Spanish
Videos of AK Warriors
Below a collection of patient testimonials going through the Acanthamoeba Keratitis rare disease journey.
Life through our eyes: Living with Acanthamoeba Keratitis
Protect your eyes: Sam’s story— keep water away from contacts
Written stories of AK Warriors
Below a collection of patient testimonials going through the Acanthamoeba Keratitis rare disease journey.
In less than 24 hours Acanthamoeba Keratitis changed my life – Juliette Vila Sinclair-Spence- (2020)
Ruth Dale – acanthamoeba keratitis – YouTube – Optometry Today – (2019)
Ian West – acanthamoeba keratitis – YouTube – Optometry Today – (2019)
My so called Amoeba by Heather Green – (2019)
Canadian blinded by water-borne parasite outraged by medication cost – CTVnewsCA – (2019)
Man blinded by parasite after showering with contacts in – FOXNews – (2019)
Anna Krauze’s experience of Acanthamoeba keratitis – Fight for Sight – (2019)
Sydney mother-of-two told she would go blind after contracting eye parasite – 7NEWSAU – (2019)
Woman’s contact lens care leads to parasitic eye infection – Carla Bayron – Wilx10 – (2019)
Blinded by Bug – Woman loses her eye after parasite burrows under her contact lens in shower on holiday – Nika Shakhnazarova – The Sun (2019)
Marie Mason – My ongoing AK Journey – (2018)
Man Diagnosed with Acanthamoeba Keratitis in Eye – Animal Planet (2018)
Mom temporarily blinded by parasite after swimming with contacts – Patricia Murphy | SWNS (2018)
Richard Brogan – gets eye infection while on holiday abroad – Kent Online (2018)
Acanthamoeba Keratitis Documentary | The Invisible Eye Infection – Chelsea Cao – YouTube – (2018)
Whitney’s Story— Keep Water Away from Contacts – CDC – YouTube – (2017)
Ryan’s Story—Water and Contacts Don’t Mix – CDC – YouTube – (2017)
Te’s Story—Don’t Sleep in Contacts – CDC – YouTube – (2017)
Claire Wilkinson – Contact lens parasite left woman paralysed and blinded – Toby Meyjes (2017)
Protect Your Eyes: Whitney’s Story— Keep Water Away from Contacts – CDC – (2017)
Irenie Ekkeshis – I was blinded by my contact lenses – BBC News – Claire Bates – BBC News (2017)
Liz Crane – My AK story – ODAK (Orphan Drug for Acanthamoeba) – Christina Ceratium – YouTube (2017)
Ian West – My experience of Acanthamoeba keratitis – ODAK (Orphan Drug for Acanthamoeba) – Christina Ceratium – YouTube (2017)
A parasite was eating my eyeball by BBC Newsbeat (2015)