Acanthamoeba Keratitis (AK), this rare disease, is affecting many lives worldwide, not only the person suffering from it but their families, friends and co-workers.
Below a collection of patient stories and testimonials going through the Acanthamoeba Keratitis rare disease journey. Whether they are in written or in video, you can experience and hopefully feel a bit of what it is like going through this horrible disease. How Acanthamoeba Keratitis impacts our life’s in so many ways.
Our aim is to gathered as many stories as possible from all over the world, to bring awareness and share that this sadly not an “unique” case, numbers are raising .. many are suffering from this.
Please remember if you are going through Acanthamoeba Keratitis, that you are not alone, that there are support groups available to help you get through this journey.
You will find them in English, Dutch, Danish, Hungarian, Portuguese, Spanish
An unwelcomed visitor named Acanthamoeba Keratitis – Water and Contact lenses don’t mix
Did You Know I have a Prosthetic Eye?
Life through our eyes: Living with Acanthamoeba Keratitis
Protect your eyes: Sam’s story— keep water away from contacts
Patient Stories – Ruth Dale going through Acanthamoeba Keratitis
Patient Stories – Ian West going through Acanthamoeba Keratitis
Acanthamoeba Keratitis Documentary | The Invisible Eye Infection (Pt. 1)
Protect Your Eyes: Te’s Story—Don’t Sleep in Contacts
My AK story
My experience with Acanthamoeba Keratitis